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I want to take drugs (medication), but I can't

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SeanTSC

Member
It would kill me.

This is going to be long, stupid, and likely a bunch of nonsense. I'm in pain every single day. Extreme pain. The only things that help at all are very strong opiates and the amount I'd have to take to manage the pain regularly would very quickly destroy my body. I've already built up a high tolerance to Hydrocodone and Hydromorphone only helps for a very short time.

Today is a bad day (and a lonely day on top of that) and I just want to take some pills and not feel like shit, but that all goes down a really bad rabbit hole.

I've been in pain for as long as I can remember. I don't know what a day without it is. I'm 32 years old and most days for me are just torture. Some of it's Neuropathy problems, some of it's Arthritis, and some of it various "Specialists" and doctors can't even properly explain to me. None of the various medications they've had me go through do anything at all to curb the pain outside of high doses of Opiates.

I've always had issues with medication. Not the addiction kind of issue though. Something worse. They're terribly ineffective on my body. All kinds of them, from pain killers to anti-depressants and anti-anxiety medication. I'm one of those people they just happen to not work on. They also almost always come with pretty terrible side effects when they're the Psychiatric kind.

I've had lots of experience with the Psychiatric kind. A lot of shit happened around me when I was a kid. I eventually became extremely agoraphobic and depressed. I went from being a kid who started reading full adult-level Novels in First Grade and getting Straight A's to failing classes and dropping out of school at 15 years old. I started almost never leaving my house at that point. I couldn't concentrate and had huge anxiety and depression problems.

My mother tried to get me help, but none of it worked. I saw many psychologists and psychiatrists thanks to insurance being awesome back then. I spent the next 10 years of my life trying literally every medication available at the time and basically feeling like a guinea pig for them. Most had very severe side effects and none of them helped even a little bit. There were also alternative treatments and I was very cooperative and would try anything suggested, but not a single thing panned out.

Eventually, I just gave up on that and resigned myself to only rarely being able to go outside. I figured a decade of slamming my head into a wall while trying everything possible was good enough. I made my peace with that part of the situation.

All the while it had always hurt just to walk on top of all of that. I'm not sure when it started. Maybe it was always there. I've always had physical problems. Not deformities or anything really life-threatening, just extreme levels of constant pain. I more or less lost my sense of smell around age 10 as well. Everything has only gotten worse and worse as I've gotten older. More pain, more problems. Sometimes I wake up screaming in pain, it sucks.

I've always felt pretty lost, like my mind was just constantly drifting. I spend most of my time playing video games, watching Anime/TV/Movies, and reading message boards. What else is there to do when you're stuck inside 24/7, right? I usually try not to think much and just get absorbed in things. I do very much enjoy all of that and truly love it all, I wouldn't do it otherwise, but it's also all just another day for me and makes me feel kind of detached from the world. It can leave me really empty.

Last year was really good for me though. I started up a complicated, but fulfilling long-distance relationship with a woman in December of 2014. It had been a long time since I had been in a relationship and it was messy at times, but it was going well and working out and we had plans to move in together. I still had all my problems and it was tough, but I was feeling like a real person again. I was in as much pain as ever, but it was so much easier to get through and I was quite happy. She understood all of my stuff, had her own issues as everyone does, and was okay with it, and I thought everything was good.

Then on Christmas Eve of December 2015 she told me she had cancer. Best day ever to give someone that news, right? She's gotten through it, but it changed her quite a bit and things have gone downhill since then. We've gotten into some big arguments. Or well, she did a lot of yelling at me anyways. I guess she felt she could fix me, change things. I thought she understood and could accept things, but that doesn't seem to be the case anymore. She now says she thought at one point I'd get a job, even though I can't possibly do that in my current condition, and that I "have so much potential" (which is bullshit).

It's not about the money (which was never an issue, thankfully), just that she wanted me to be more of a person or something. She now has it in her head that all I do is spend every day doing nothing but "leisure" and that I should at least go volunteer somewhere. Sometimes it feels like she thinks that you can't or shouldn't enjoy time at home unless you're torturing yourself at a job all day long. Never mind that I'm in more pain than ever and I have to fight anxiety on top of all of that which just kills me. Being here at home all day is not some stroll in the park and it takes everything I have to keep myself together a lot of the time.

Another part of the argument was her being mad at me for "giving up." Never mind the fact that I went above and beyond what anyone would expect of a person with trying medication and treatment for an entire decade of my life. I tried and tried and failed and tried again over and over and picked myself up trying to fix shit no matter how many times it didn't work out for over 10 straight years. I do not give up on anything easily and I think I tried enough. That doesn't seem to matter to her anymore though.

She absolutely hates her job, btw. Most of the things we've "talked" about for a while now is just her telling me about her awful coworkers that she never takes steps to do anything about. She just sits there and puts up with all of it while it totally drains her. Oh, and she never told anyone at work that she had cancer and never took any time off for it. Just worked through it all with some crazy level of stoicism that I can't even comprehend.

So anyways, that relationship has gone downhill. She's always too tired from work now to talk much, we haven't seen each other in a while, and it feels like we've totally drifted apart. Hell, it basically feels like she's bored of me. In one of the last arguments she mentioned she might want to try living/being alone for a while (she was on her 15th year of marriage when we met - yeah yeah, I know). I don't know if it's over, it probably isn't going to work out. I wish it would, but what am I supposed to do at this point?

Now I'm back to feeling how I was before last year. Empty, drifting, trying to keep my head straight while pushing down a shitload of pain that will never ago away.


TL;DR: My insomnia kicked in, I felt like writing down my thoughts for the first time in forever, and I just want to take a shitload of fucking opiates, man. But I can't, because it'll only make things worse.

And sorry if there's already thread more appropriate to put this post in!
 

SeanTSC

Member
Tried weed?

Yep. It helps some of the smaller problems, but not the big ones. I have tried literally everything within reason short of doing heroine and hardcore drugs that I will not touch. I have even had straight Morphine from doctors (which didn't help much).
 

Calderc

Member
Yep. It helps some of the smaller problems, but not the big ones.

What ways have you tried? Just smoking or have you tried vaping, edibles, concentrates etc? Have you tried varying levels of THC/CBD?

Other than that, I'm all out of advice. Truly hope you find something that works for you and live a pain free life <3
 

SeanTSC

Member
What ways have you tried? Just smoking or have you tried vaping, edibles, concentrates etc? Have you tried varying levels of THC/CBD?

Other than that, I'm all out of advice. Truly hope you find something that works for you and live a pain free life <3

Every which way. I did a hell of a lot of it when I was in my mid 20s thanks to a rich friend who was generous and loved experimenting with the stuff. When I said I spent 10 years trying everything, I mean everything (short of super hardcore illegal drugs). Just smoking it is good enough for some minor stuff, but it doesn't make any impact on the major stuff at all sadly.
 

oxrock

Gravity is a myth, the Earth SUCKS!
If my life was torture as you describe it, I think i'd stay high until I died.
 

NotSelf

Member
Have you tried meditation it won't cure your ailment but it is a way to deal with it and be more at peace with it. I should add it takes effort like someone going to the gym for the first time and lifting weights it's not very pleasant at first but it does get better over time.
 

SeanTSC

Member
Fibromyalgia?

Also what antidepressants are you talking about? SSRI, SNRI, MAOI, tricyclic?

Yeah, fibro is one of the many issues and the Hydromorphone can help take the edge off it, but I can't take enough in any regular manner without doing more harm to my body with it. It would significantly shorten my life span as opiates tend to do.

And I'm talking about all of them. From age 15 to 26 or so I was a bunch of psychiatrists' guinea pig for everything under the sun. Most of it caused bad shit. Seizures, vomiting, passing out, all kinds of crap. None of it did any good. Depression was always secondary to the Anxiety though, which was and is the bigger issue. Heh, at one point one of the doctors pretty much went "well, your brain is just fucked, nothing left to do" (paraphrasing). I never gave up on whatever they wanted to try and was willing, but at some point after a decade we just ran out of shit and that was that.
 

SeanTSC

Member
Have you tried meditation it won't cure your ailment but it is a way to deal with it and be more at peace with it. I should add it takes effort like someone going to the gym for the first time and lifting weights it's not very pleasant at first but it does get better over time.

Yep, doesn't really work for me in the traditional sense. The "best" I can do there is just let myself get totally enthralled while playing or watching something and kind of turn my brain off. I'm always trying to watch or play something new. I'm up over 1000 different anime series watched, kept a list updated a couple years ago that was in the 900s before I stopped updating it. And I buy a lot of games - last year I averaged 4.25 new games per month.

I can't really shut my thoughts off otherwise and I end up thinking a million things a minute if I'm not doing something.

And as for Gym type stuff - doesn't really work out with the Anxiety thing. I try to do some stuff at home though and have a bike and such that helps me from completely falling apart.

I did manage to go to a PT place for a while last summer/fall twice a week. It didn't help with the pain or any problems, but it was kind of nice to get out of the house, even though it completely drained me and that was the absolute most I could handle being out. Then a drunk driver totaled my car on Halloween Night this last October.

FYI for anyone who read the thread about that Drunk Driver totaling both my mom's and my car in one hit - I recently found out that literally nothing happened to her. No ticket, no charges, nothing. Her dead dad was someone "important" around here when he was alive and they totally swept the whole thing under the rug for her.
 

GJS

Member
The benefits of opiates at pain controlling doses in chronic pain far outweighs any risk prescribed opiates may have on life span.

The adverse effects of uncontrolled pain are going to have a much greater effect on life span, particularly with reduced quality of life and exacerbation of secondary conditions such as depression etc.

There is no ceiling to dosage of opiates in pain, provided they are tapered up slowly and used properly. Adverse effects of opiates even at high doses can be very well managed.

In the long term, does it matter if the opiates have any effect on life span?

Would you rather live 55 years pain free and happy.
Or 60 years with low quality of life, constant pain, worsening depression and physical health etc etc.
 

SeanTSC

Member
The benefits of opiates at pain controlling doses in chronic pain far outweighs any risk prescribed opiates may have on life span.

The adverse effects of uncontrolled pain are going to have a much greater effect on life span, particularly with reduced quality of life and exacerbation of secondary conditions such as depression etc.

There is no ceiling to dosage of opiates in pain, provided they are tapered up slowly and used properly. Adverse effects of opiates even at high doses can be very well managed.

In the long term, does it matter if the opiates have any effect on life span?

Would you rather live 55 years pain free and happy.
Or 60 years with low quality of life, constant pain, worsening depression and physical health etc etc.

In normal doses? Sure, that's *possible*. In the amount I have to take for it to help even a little bit it's dangerous. I can't get "pain free" with any of them either way. At best I can take a little bit of the edge off, which isn't much. Also Opiates are dangerous things and those adverse effects shouldn't be understated either. They really screwed a friend of mine up who was on doctor prescribed, normal doses.
 

gaiages

Banned
This is somewhat random, and I know you don't really need the money, but have you considered maybe taking some internet work? There's a thread here with a few different options. It's not really going to help you get out of the house or anything, but it might help fill the time up and help you feel a bit more productive. It's also completely freelance, so you can only work when you can, and aren't forced into a particular schedule if you have any rough patches or anything.

I'm sorry I don't really have more advice than that. It sounds completely horrid what you're going through, I can't even begin to imagine it. Best wishes.
 

GJS

Member
In normal doses? Sure, that's *possible*. In the amount I have to take for it to help even a little bit it's dangerous. I can't get "pain free" with any of them either way. At best I can take a little bit of the edge off, which isn't much. Also Opiates are dangerous things and those adverse effects shouldn't be understated either. They really screwed a friend of mine up who was on doctor prescribed, normal doses.
Opiates are dangerous when used incorrectly. In a long term opiate user constantly taking their medication, a very high dose is going to be no more dangerous than a low dose, provided it is used correctly and consistently.

The biggest risk with them is accidental overdose.
Such as when people are given too much because they are not tolerant or have lost their tolerance due to large gaps between dosing.
Or when people make mistakes, and repeat doses in chronic users before they are due.

With a gradually tapering daily dose in line with any developing tolerance, the chance of running into these issues are limited.

Constipation can be managed even at very high doses.
Tolerance to sedation develops, and it is a balance between function whilst sedated vs not being able to function whilst in pain.
Respiratory depression is rarely seen during correct usage and again is usually seen when overdoses happen.

A good chronic pain clinic can manage all of these things, a long with other methods and medications to augment the opiates.
 

SeanTSC

Member
This is somewhat random, and I know you don't really need the money, but have you considered maybe taking some internet work? There's a thread here with a few different options. It's not really going to help you get out of the house or anything, but it might help fill the time up and help you feel a bit more productive. It's also completely freelance, so you can only work when you can, and aren't forced into a particular schedule if you have any rough patches or anything.

I'm sorry I don't really have more advice than that. It sounds completely horrid what you're going through, I can't even begin to imagine it. Best wishes.

If I get to the point where I can concentrate on something like that again I'll try it, thanks.

And sometimes I have good stretches! Last Night/Today was really bad, especially coupled with the relationship stuff, and yeah in general it sucks, but a lot of the time I can shut things out and get lost in games or show for hours.

The worst is when I just can't keep my mind off it. Talking and chatting helps. It helps to vent like this too. And hey, it could be worse. Sure, I'm in pain all day every day and can't really go out much, but at least I get to play and watch pretty much whatever I want (which isn't as great as it sounds when it's the only stuff you can do, but still). And even with all of these problems I've still had relationships. They haven't lasted, yet, but they happen.

So, yeah. Sorry for the huge wall of text and thanks to anyone who has read it and responded on my extra bad day. You've helped make today better!
 

hunchback

Member
Wow. Reading the OP is like looking in a mirror. You should PM me, we share quite a few problems.
Instead of Fibro, I have Ankylosing Spondylitis. My Dr put me on lethal doses of opiates, sleeping pills and depression drugs. I know exactly what you are going through and it sucks. It feels like each day takes forever because you're stuck in the house. Movies, games and books only work for a certain time. Your mind works non stop, you constantly want out of your own body.
Please PM me if you feel like talking more. I've lived your life for 17 years now and they still can't help with pain.
 

Emerson

May contain jokes =>
The benefits of opiates at pain controlling doses in chronic pain far outweighs any risk prescribed opiates may have on life span.

This is not established and is actually controversial. A large percentage of doctors do not agree that opioids are effective for chronic pain, and there are plenty that believe opiates actually worsen chronic pain. I have seen more studies supporting the latter idea than I have studies showing efficacy of opiates in chronic non-cancer related pain, but the body of literature is lacking in general.
 

Husker86

Member
If I get to the point where I can concentrate on something like that again I'll try it, thanks.

And sometimes I have good stretches! Last Night/Today was really bad, especially coupled with the relationship stuff, and yeah in general it sucks, but a lot of the time I can shut things out and get lost in games or show for hours.

The worst is when I just can't keep my mind off it. Talking and chatting helps. It helps to vent like this too. And hey, it could be worse. Sure, I'm in pain all day every day and can't really go out much, but at least I get to play and watch pretty much whatever I want (which isn't as great as it sounds when it's the only stuff you can do, but still). And even with all of these problems I've still had relationships. They haven't lasted, yet, but they happen.

So, yeah. Sorry for the huge wall of text and thanks to anyone who has read it and responded on my extra bad day. You've helped make today better!

So is something like programming out of the question? You said playing games/watching TV takes your mind off of it a bit, is doing something that requires your mind, but in a focused state like computer programming, helpful or not?

It amazes me how fast time goes by when I start coding/designing.
 

boinx

Member
Psychedelic drugs could help. They will make you think about things from a new perspective and help you do some serious introspective thinking. Sure some of the thoughts you come up with can be just silly stuff but there's always a chance of discovering something important too. Anyway I suggest doing some research on these substances on wikipedia and erowid and find out if they could be something you might want to try.
 

willow ve

Member
Have you thought of trying sensory deprivation therapy (also called float therapy?)

Does it help you to vent / talk / rant / post about your issues? Have you considered professional psychotherapy?
 

hunchback

Member
Psychedelic drugs could help. They will make you think about things from a new perspective and help you do some serious introspective thinking. Sure some of the thoughts you come up with can be just silly stuff but there's always a chance of discovering something important too. Anyway I suggest doing some research on these substances on wikipedia and erowid and find out if they could be something you might want to try.

I have thought about trying this. My main concern is that I take Effexor and wonder if that will irritate whatever psychedelic I choose to try. I have mushroom chocolates in my freezer but have been afraid of trying them because of the antidepressant.

I have read the same info about long term opiate use actually causing more pain. I also talked to my pain Dr and he agrees. I personally can't tell because it's non stop anyway.
 

Huff

Banned
This is not established and is actually controversial. A large percentage of doctors do not agree that opioids are effective for chronic pain, and there are plenty that believe opiates actually worsen chronic pain. I have seen more studies supporting the latter idea than I have studies showing efficacy of opiates in chronic non-cancer related pain, but the body of literature is lacking in general.

Well it doesn't seem like there are a ton of better options at this point. I assume hes been on alternative non opiate pain medication in the past
 

FatalT

Banned
Look up Kratom. It's an Indonesian plant with opiate-like properties. If you would like to know more, please feel free to PM me.
 
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